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Happy March!!! Just saying hi !!!

Posted by daniellealvarado on March 6, 2010 at 6:19 PM

I am sorry I haven't written in awhile my son, Anthony was diagnosed with a heart condition, called, Long QT Syndrome, I am putting a description for anyone who has never heard of it:


Long QT syndrome (LQTS) is a heart rhythm disorder that can potentially cause fast, chaotic heartbeats. These rapid heartbeats may trigger a sudden fainting spell or seizure. In some cases, your heart may beat erratically for so long that it can cause sudden death.

You can be born with a genetic mutation that puts you at risk of long QT syndrome. In addition, certain medications and medical conditions may cause long QT syndrome.

Long QT syndrome is treatable. You may need to limit your physical activity, avoid medications known to cause prolonged Q-T intervals or take medications to prevent a chaotic heart rhythm. Some people with long QT syndrome need surgery or an implantable device.


I was really shocked and surprised at the diagnosis, as it was found through an EKG, and alot of the time, it is found through an autopsy, very scary!!!! I think everyone if there are issues in your family or even if there is not, should when you have a physical, get an EKG done and if you are experiencing heart racing, or palpatations get to your Dr. and let them check you out!!


Anthony does not talk, but he is doing so much better, as they put him on a Beta Blocker, and he is even calmer!!! I hope you all are doing well, and are surviving your days though they may be stressed, take a few moments to enjoy, as Anthony though he can be very challenging and constant, I am so happy we discovered this issue as now he should be ok, and live a long life!!


I just want you to know if you need to vent or as always have something to share, feel free and let me know.  Stay Well, and til the next time, BYE!!! Danielle

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